Service Summary

• Haemophilia Care reviews are performed each Thursday 9am-12 midday.

• Appointments can be arranged by telephone on  (08) 9224 2897.

• All medical specialities are available through referral from the Haemophilia Centre.

• Dental treatment either as an inpatient or outpatient can be arranged as appropriate.

• Genetic counselling and laboratory services for bleeding disorders are available.

• If you have any questions regarding the clinical care of haemophilia or other bleeding disorders 
  please ring us on (08) 9224 2937 for advice.

• Haemophilia Foundation Counsellor/Co-ordinator can be contacted on (08)9224 2330 or 015 771 255.

WHAT THE HAEMOPHILIA CENTRE OFFERS

1. CO-ORDINATED COMPREHENSIVE CARE.

Your problem is our problem. Our staff will endeavour to provide the best quality haemophilia care that is appropriate to the particular individual's circumstance.

All facets of haemophilia care are covered by the centre and all you need to do is ask.

Some medical problems that are most commonly encountered include; acute bleeding especially into joints and following trauma, arthritis, joint replacement, liver infection particularly hepatitis C, HIV infection, factor VIII inhibitor development, wisdom teeth removal, genetic counselling, family studies and general surgery. All facilities for good haemophilia care are located on site. The haemophilia team is involved in all aspects of your haemophilia care which range from the medical to nursing, counselling social, physiotherapy and include any aspect of a person's life with a bleeding disorder.

2. PROMPT SERVICE.
Clinical urgency dictates the timing of treatment/ appointments. Urgent problems are dealt with immediately and clinical and dental appointments at the centre are scheduled so inconvenience is minimised. Please discuss any requirements that you may have and we will endeavour to accommodate these to the best of our ability.

3. DENTAL TREATMENT.
Arrangements can be made for our experienced dentists and oral surgeons to perform any procedure, even those requiring a general anaesthetic, either as an inpatient or outpatient under the care of the haemophilia team.

4. EMERGENCY TREATMENT.
A 24 hour cover is provided for haemophilia care. Protocols for drug and factor VIII dosages are calculated for each individual and is recorded in their clinical notes, on the haemophilia card and a copy given to the person. The haematology registrar may be contacted by telephoning Royal Perth (08) 9224 2244 on Saturday and Sunday from 9am-12midday for assessment and AHF infusion. Outside these hours you should attend the hospital's Emergency Department with your documentation.

5. EASE OF ACCESS.
Urgent supplies of AHF may be obtained quickly by the Haemophilia Centre from Red Cross, which is just 100 metres away. Short term parking off Wellington Street provides flat access of 50 metres to the Haemophilia Centre.

6. LIAISON WITH PRINCESS MARGARET HOSPITAL.
The transition from adolescent to adult haemophilia care will be easier with attendance of the adult haemophilia team at the PMH Haemophilia Clinic. Issues of haemophilia care of mutual interest will be discussed regularly.

PHILOSOPHY OF THE ROYAL PERTH HOSPITAL HAEMOPHILIA CENTRE

Comprehensive care when established in a central location provides an efficient use of existing resources by offering all needed services in one centre. The various disciplines involved are co-ordinated for a united, holistic approach leading to better care for the person with haemophilia and their family. The focus then turns away from specific crisis treatment to prevention of these problems ever occurring in the first place. Communication is enhanced by identification of the haemophilia team as being responsible for care. Accurate data collection is made possible so that the allocation of resources may be appropriate for optimal care. The best information possible is communicated so that the individual may make the most informed decision about their medical treatment.

Our overall goal is ensuring each individual realises his physical and social capabilities to their maximum potential. Comprehensive care empowers people by allowing informed decisions to be made with experienced health professionals advising patients and families with bleeding disorders.

The initial visit to the Haemophilia Centre plans future care and provides updates on haemophilia issues. Unless specific problems are identified, the supply of drugs and/or AHF will be co-ordinated from the Haemophilia Centre. Yearly evaluations are recommended as developments regarding haemophilia occur at a rapid pace and this may be discussed at that time. However, the whole aim is to enable people with haemophilia to stay away from the dependence of hospital clinics and lead their personal lives to the full. If specific problems arise you can be reassured that the best expertise is available to deal with any situation you may encounter.

©2001 RPH Division of Laboratory Medicine

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Last Edited: Friday, 29 July 2005